PACS (Long Covid) Dying to Live Campaign

The Wigan post reports here,


Louise Barnes, who founded the Post Acute Covid-19 Syndrome Support group online, is trying to drum up public support to help those still suffering symptoms months after first becoming ill on leading petition website Change.org.

Her petition Dying To Live calls on ministers to safeguard those suffering from Long Covid by ensuring they have access to high-quality support and help.

The Wigan post continues,

The Department for Health and Social Care (DHSC) said it is investing heavily in trying to understand and treat this new illness.

This may be called a new illness but research indicates that this virus does what other viruses do, so it’s not just long Covid that can be dealt with. But it is apparant that they are putting it down to being psycholigical. Now some of the symptoms would be correct or a secondary effect, but others are caused by the physical damage of the virus. But the psychologists are pushing their narative.

The Wigan post says,

Louise said: “We feel patients need to be safeguarded from some of these therapies.

“We’re trying to prevent this being labelled as a psychosomatic illness. We know Long Covid patients are developing organ damage and yet some people on the Facebook group have been told they are feeling ill because of childhood trauma or that it’s all in their heads.

“Treatment needs to be science-based and peer-reviewed. Nice has already said that people with similar conditions to us shouldn’t be doing the exercise therapy. It is ridiculous that people are being sent for it.”

The petition says Long Covid patients need to be offered scans to check their organs and describes the current position across the country for getting help as a “postcode lottery”.

We understand that some people involved in implementing this treatment based on it being from ‘childhood trauma’ (yes they have discussed it in meetings) don’t like this cautous approach, but it is about keeping people alive.

The Wigan post continues,

The petition says Long Covid patients need to be offered scans to check their organs and describes the current position across the country for getting help as a “postcode lottery”.

It is reasonable that patients have scans before signing up to something that may do them harm.

There are those who would beneifit from the pychobable treatement, but there are thousands who it could harm, who would be better off with the treatment that has been peer reviewed sitting on Matt Hancock’s desk for the last couple of months.

They probably can’t make head or tail of what was sent. This isn’t a new problem. If there was people in Westminster who knew how to read a science paper, the government of the day wouldn’t have declared that there was no link between BSE and CJD.

This entry was posted in Uncategorized. Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s